Annotated bibliography for deaf Roma children in the UK

We’ve written a summary of some articles and reports about Roma communities and deafness that we’ve found useful. We’ve included a link to an open access version where available.

ARACELI, Á., IGNACIO, D. C., MANUELA, V., A., A. L., ANNA, G. N., ALICIA, L. N., A., M. P. M. & FELIPE, M. 2005. High prevalence of the W24X mutation in the gene encoding connexin‐26 (GJB2) in Spanish Romani (gypsies) with autosomal recessive non‐syndromic hearing loss. American Journal of Medical Genetics Part A, 137A, 255-258.

Research article reporting on the screening of 34 Spanish Roma families which identifies that there is a recessive gene that causes a higher incidence of hearing loss among Roma populations

Link to article

Brown, P.,Shallice, A.,Brown, G.,Ivatts, A. 2018. Roma and Brexit. Report on a Joint All Party Parliamentary Group roundtable event

Link to report

BELUSCHI-FABENI, G., LEGGIO, D. V. & MATRAS, Y. 2018. A lost generation? Racialization and stalled social mobility in a group of Roma migrants in the UK. Migration Studies.

Ethnographic research which details how social mobility among Roma migrants in Manchester has stalled. Of interest because it provides useful insights into Roma family structures

Link to article

BOBAKOVA, D., DANKULINCOVA VESELSKA, Z., BABINSKA, I., KLEIN, D., MADARASOVA GECKOVA, A., CISLAKOVA, L. & TEAM, H.-M. 2015.

Differences between Roma and non-Roma in how social support from family and friends helps to overcome health care accessibility problems. Int J Equity Health, 14, 37.

Academic article that uses data from a large scale study of health in Slovakia to consider how Roma access health care. Finds that Roma are three times more likely to report difficulties in accessing health care providers. Support from family is important in overcoming these difficulties. Recommends that there is a need for trusted community mediators.

Link to article

CASHMAN, L. 2017. New label no progress: Institutional racism and the persistent segregation of Romani students in the Czech Republic. Race Ethnicity and Education, 20, 595-608.

Research article that considers the segregation of Roma children in the Czech school system through the misdiagnosis of SEN and through schools which are designated as Roma and offer a substandard education. Finds evidence of institutional racism and that little progress has been made in changing the educational system despite criticism.

Link to article

COOLS, P., LEGGIO, D. V., MATRAS, Y. & OOSTERLYNCK, S. 2017. ‘Parity of Participation’ and the Politics of Needs Interpretation: Engagement with Roma Migrants in Manchester. Journal of Social Policy, 47, 359-376.

A systematic review of research on quantitative studies of Roma health and health care.  Concludes there are significant disparities between Roma communities and the general population.

Link to article

COOK, B., WAYNE, G. F., VALENTINE, A., LESSIOS, A. & YEH, E. 2013. Revisiting the evidence on health and health care disparities among the Roma: A systematic review 2003–2012. International journal of public health, 58, 885-911.

Considers the interactions between service providers and Roma communities in Manchester. Makes recommendations for best practice in provision of services to Roma.

Link to article

CREŢAN, R. & POWELL, R. 2018. The Power of Group Stigmatization: Wealthy Roma, Urban Space and Strategies of Defence in Post-socialist Romania. International Journal of Urban and Regional Research, 42, 423-441.

Research article about wealthy Roma in Romania. Identifies how even rich Roma face prejudice and discrimination and argues that the stigmatization of Roma has a long history and cannot be related only to poverty.

Link to article

ESCOBAR-BALLESTA, M., GARCÍA-RAMÍREZ, M., MIRANDA, D. & PETROVA-BENEDICT, R. 2018. Shedding light on governance for Roma health inequities. Journal of Prevention & Intervention in the Community, 46, 84-99.

Research article which reviews previous research and policy and demonstrates how there is general health and disability inequality for Roma communities and that previous efforts to address this have failed. The article suggests the need to take an intersectional approach to Roma healthcare and the need for international governance.

Link to article

EUROPEAN COUNCIL 2014. Roma health report, health status of the Roma population data collection in the Member States of the European Union. Luxembourg: Publications Office.

Web page that outlines the EU’s concerns about Roma across Europe and contains links to individual countries’ responses.

Link to article

GREAVES, L. 2016. Education: A Roma perspective. Roma Support Group: London

Report that gives an overview of Roma communities, provides practical information for professionals and gives the perspective of young Roma people.

Link to report

LATORRE-ARTEAGA, S., GIL-GONZÁLEZ, D., VIVES-CASES, C. & LA PARRA CASADO, D. 2017. Vision and Hearing Health Inequities in the Roma population: A National Cross-Sectional Study in Spain. Journal of Immigrant and Minority Health, 19, 1304-1314.

Quantitative survey of vision and hearing loss for 1167 Spanish Roma families in comparison with the general Spanish population. Identifies higher levels of visual and hearing impairment as well as lower levels of hearing aids and glasses among the Roma population.  Suggests that Roma communities are also more likely to suffer from poor mental health and identifies that there is a need to know more about barriers to Roma accessing services.

HANSSENS, L. G. M., DEVISCH, I., LOBBESTAEL, J., COTTENIE, B. & WILLEMS, S. 2016. Accessible health care for Roma: a gypsy’s tale a qualitative in-depth study of access to health care for Roma in Ghent. International Journal for Equity in Health, 15, 38.

Research article drawing on interviews with Roma and service providers in Ghent. Concludes that Roma can find it difficult to access complex systems and appointments, can have poor literacy and can be suspicious of outsiders. Highlights the need for health mediators from Roma communities

Link to article

HUMPHRIS, R. 2017. Borders of home: Roma migrant mothers negotiating boundaries in home encounters. Journal of Ethnic and Migration Studies, 43, 1190-1204.

Ethnographic research about Roma mothers and how their relationship with their children becomes policed as part of border relations. Considers relationships with frontline workers who visit Roma mothers at home.

KYUCHUKOV, H., VILLIERS, J. D. & TABORI, A. T. 2017. Why Roma Children Need Language Assessments in Romani. Psychology of Language and Communication, 21, 215-243.

Provides an overview of the Romani language, discusses how Roma children are typically multi-lingual and suggests that Roma children benefit from being assessed in Roma in addition to other languages on entry to school.

Link to article

MAŠINDOVÁ, I., ŠOLTÝSOVÁ, A., VARGA, L., MÁTYÁS, P., FICEK, A., HUČKOVÁ, M., SU˚ROVÁ, M., ŠAFKA-BROŽKOVÁ, D., ANWAR, S., BENE, J., STRAKA, S., JANICSEK, I., M.AHMED, Z., SEEMAN, P., MELEGH, B., PROFANT, M., KLIMEŠ, I., RIAZUDDIN, S., KÁDASI, L. & GAŠPERÍKOVÁ, D. 2015. MARVELD2 (DFNB49) mutations in the hearing impaired Central European Roma population – Prevalence, clinical impact and the common origin. PLoS ONE, 10.

Research article concerned with gene testing of 85 deaf Hungarian Roma and 143 deaf Slovakian Roma. Finds there is a genetic mutation that causes pre-lingual bilateral moderate to profound sensorineural hearing loss.

Link to article

MORRIS, M. 2016. Roma Communities and Brexit. London: IPPR.

Report that provides a useful summary of Roma communities in the UK and some of the challenges they face.  Gives a list of recommendations for local authorities. Argues that post Brexit there is an urgent need to develop strategies for integration.

Link to article

PAYNE, M. 2017. The inclusion of Slovak Roma pupils in secondary school: contexts of language policy and planning. Current Issues in Language Planning, 18, 161-180.

Ethnographic research which discusses how Roma children may have negative experiences of education and very limited schooling. Details the inclusion strategies of one school in the UK

Link to article

PENFOLD, M. 2016. Improving education outcomes for pupils from the new Roma communities. London, British Council.

Report which identifies raising Roma children’s attainment as one of the largest challenges in UK education.  Makes a range of practical suggestions for raising attainment

Link to article

Roma Education Fund

Provides a series of reports assessing the status of Roma education in Central and Eastern Europe. Details systematic discrimination and segregation.

Link to reports

Roma Support Group

A Roma led charity that have published a range of useful reports.

Link to reports

SIME, D., FASSETTA, G. & MCCLUNG, M. 2017. ‘It’s good enough that our children are accepted’: Roma mothers’ views of children’s education post migration. British Journal of Sociology of Education, 1-17.

Research paper detailing Roma children’s exclusion from education based on a study of families in Glasgow. Concludes there is evidence of multiple and complex disadvantage and recommends an approach that targets women.

Link to article

WEBB, E., RYAN, A. D. & O’HARE, B. A. M. The needs of children newly arrived from abroad. Current Paediatrics, 15, 339-346.

Article which reviews the health issues facing migrant children and briefly considers Roma children alongside other vulnerable groups such as refugee and asylum seeker children and children with disabilities.

WILKIN, A., DERRINGTON, C., WHITE, R., MARTIN, K., FOSTER, B., KINDER, K. & RUTT, S. 2010. Improving the outcomes for Gypsy, Roma and Traveller pupils. London: Department for Children, Schools and Families

Literature review that Gypsy, Roma and Traveller are the lowest achieving group in English schools and makes recommendations for improving their outcomes

Link to article